Virtual Reality Experience Mimics Schizophrenia to Teach Health Professionals About Their PatientsThe virtual reality simulator Mindstorm lets viewers experience the world through the mind of an individual living with untreated schizophrenia.
We work to improve the quality of life for those affected by schizophrenia and psychosis through education, support programs, influencing public policy, and encouraging research.
From the July 4th edition of the Halifax Chronicle Herald:WHO WRITES your prescriptions?
By Charles Cirtwill
I always thought it was my doctor who diagnosed my problem, decided on the appropriate drug and wrote a prescription. Boy, was I wrong.
Apparently, there are a great many people telling our doctors what they can and cannot prescribe and when. The latest group to be added to the mix is the Common Drug Review. The CDR is an inter-provincial panel that reviews drugs for purchase and use in situations where the provinces pay for drugs – i.e., for the most vulnerable among us, the elderly, those in hospital, and those unable to afford private drug plans of their own.
The CDR was intended to streamline the process of approval of drugs for purchase by governments in Canada by creating a single window for review. Unfortunately, once Health Canada certifies a drug as safe for use, it is then reviewed not only by the CDR but by the old provincial approval systems (they never went away), and in many cases by further approval committees at the health district and hospital levels, and by independent agencies that oversee drug plans for veterans, public servants and the military (among others).
The result is a great deal of duplication and a continued lack of consistent drug coverage. Veterans, politicians and public servants, for instance, have quite broad formularies (a list of drugs the specific drug plan will pay for) compared to the rest of us. Similarly, the province of Quebec will cover many drugs not available under provincial plans elsewhere in Canada.
Of the 53 drugs that were reviewed by the CDR between 2003 and 2006, 53 per cent were rejected. Quebec, which does not participate in the CDR, rejected only 38 per cent. That translates into 11 new drugs paid for by the government of Quebec that are not paid for elsewhere in Canada because of the efforts of the CDR.
Now, remember, you can pay for ALL of these drugs privately if you wish because all of them have been approved for use by Health Canada.
Yes, that means they have gone through clinical trials and have been approved as safe for human consumption and as having positive and demonstrable effects in the treatment of specific diseases. But in 53 per cent of the cases, public servants decided that the most vulnerable among us should not have access to these drugs. That decision was made because the cost of those drugs to the provincial treasury outweighed the benefit they delivered to affected patients.
Or, at least, we think that was the reason. You see, you and I have no right to know what evidence was considered, what questions were asked, what experts were consulted, or what trade-offs were made when these decisions were reached. That lack of accountability arises because, while it provides this service for the federal and provincial governments, and our tax dollars pay for it, the CDR is technically a private, not-for-profit entity and does not report to you, or to anyone, and is not covered by freedom of information laws.
Let’s be clear. These are hard decisions, decisions that have to be made. But they must be based on the best available evidence and the most accurate definition of total system cost available. They must be made promptly and in a dependable, transparent manner. They cannot be made behind closed doors or in a manner that results in their veracity being in any way in doubt. We must demonstrably account not only for the short-term savings by refusing certain drugs, but the long-term potential costs of other treatments that will be necessary in the absence of those drugs.
Consider private drug plans. Private plans make use of generic replacement stipulations, for example, that allow them to reduce costs and cover more services – a good thing. But normally, if your doctor makes the case that only the brand name medication will work for you, then they allow for that. Simply put, it is better for the insurance company to pay a higher price now rather than risk that you will get sicker and need more – and more expensive – care later on.
This is something the CDR should be considering next time the news is full of stories about bed shortages and staffing challenges: Health is an interconnected system and the cash all comes from one source. Saving on drugs today generally means more spending on doctors, nurses and hospitals tomorrow.
Charles Cirtwill is the acting president of the Atlantic Institute for Market Studies, a non-partisan public policy think tank based in Halifax.
A Journey in SchizophreniaA rare and fascinating book, this is Mary Ellen Tramble’s haunting, tender autobiography of her life with schizophrenia. With the power and detail of a novel, and laced with her small, strong poems, it is, as well, an extraordinary and moving work of art. “Listen to the Wind” displays the tense and terrifying sentences, the sudden self-mocking and degradation, the grand insights that take Tramble (and us) high on the ferris wheel of emotions—and then toss us overboard for the plunge [a person living with schizophrenia] knows only too well. In “Listen to the Wind,” Mary Ellen Tramble has made of her struggle a lasting piece of extraordinary writing. We can only be grateful for her determination to record, and her courage and generosity to share. “A monument to the tenacity of the human spirit in its struggle to face mysterious terrors, maintain hope and avoid despair.” — Sheldon Currie, author of “The Glace Bay Miners’ Museum” "For all of the pain and fear in ‘Listen to the Wind,’ there is also great love and beauty.” — Patrick F. Walsh, editor and author of “The History of Antigonish”
176pages . $14.95 . ISBN 1-895415-56-X . Breton Books

To view the list, click here (downloads a PDF).
Crown Attorney Ruth Peters Wakeham and Newfoundland Provincial Court judge David Orr in a Mental Health Court in St. John’s.[...]
In Nova Scotia, no formal investigation into the issue is underway, but the establishment of a mental health court is clearly being bandied about. The Nova Scotia Barristers’ Society devoted the most recent issue of its monthly newsletter to the topic. In that issue, Frank Hoskins, chief Crown attorney for the Halifax Region and Special Prosecutions, noted that, “Currently, Nova Scotia has an Adult Diversion Program, which is a post-charge, pre-trial option to the criminal justice system. A pre-charge option is worthy of consideration as it would create another viable alternative to deal with minor offences.
“In cases where it’s more appropriate,” he added, “this would enable specifically trained police officers to divert an accused away from the criminal justice system. More serious offences could be directed to the mental health court where judges and lawyers qualified or trained to deal with cases of this nature (and with ready access to the appropriate health professionals, which could include psychologists, psychiatrists and case workers) could develop and implement an appropriate treatment plan.”
[...]
... “The custodial response to people with mental health problems is an historic one,” said Archie Kaiser, a professor in the Faculty of Law and Department of Psychiatry at Dalhousie University.
“To incarcerate people merely because we have failed to develop appropriate supports has always been shameful,” he added. “In 2007, this is totally unacceptable.”
Actress Mariel Hemingway (left) presents a Voice Award in August 2006 to Stamp Out Stigma founder Carmen Lee for her efforts to combat the stigma surrounding mental illness.[...}
The program has also helped panelist Ina Pottorff, 47, who lives in Foster City, Calif., to understand her experiences with mental illness over the years by relaying her story to others.
Pottorff described herself as a moody teenager who was misdiagnosed with depression as an adult.
When she was finally diagnosed with bipolar disorder and treated with a combination of medicines, she began to become more stable.
Throughout her life, Pottorff has been no stranger to stigma. For instance, during one of her first encounters with psychiatric emergency services at a county hospital in California, an intake nurse asked her about her educational level. Pottorff truthfully replied that she had a master's degree in criminology, and when asked about work, she told the nurse that she'd worked for the National Park Service and had been stationed at the White House.
The nurse turned around and scribbled on her chart, speaking aloud as she did, according to Pottorff.
"Thinks she was a tour guide at the White House. Is delusional," the nurse said, and took steps to have the baffled patient committed to the hospital involuntarily.
Said Pottorff, "I protested and told the nurse that I was telling the truth—that I'd show them my plaques and awards at home," but the nurse wouldn't hear of it.
These days she relays this story to audiences and usually gets a chuckle. But she also gets much more from her audiences.
"For years I thought I was the only one who was sick, who felt isolated, who couldn't get along with other people, and who could barely function," she told Psychiatric News. "Through SOS, I have learned that I am not alone."
Researchers have long known that substantial proportions of nonclinical populations have sub-threshold manifestations of depression and phobia. It is striking to find that the same is true for psychotic experiences.For more information, click here.

Beginning July 3, it may be easier for people who need it to receive mental health treatment. It may also be easier to impose that treatment on people whose illness lessens their decision-making ability.
Stephen Ayer, executive director, Schizophrenia Society of Nova Scotia, says the new Involuntary Psychiatric Treatment Act tries to balance patients’ rights with ensuring people receive the treatment they need. It replaces a section of the Hospital’s Act that predates Canada’s Charter of Rights and Freedoms.
Among the most notable changes from the Hospital’s Act, the Involuntary Psychiatric Treatment Act broadens criteria for admitting people without their consent, while introducing independent patient rights advisors. It also introduces legally binding treatment plans while encouraging community living and access to mental health services.
For Capital Health, the Act could mean greater demand for mental health inpatient acute care and more visits to emergency rooms. Debbie Phillips, bed manager, Mental Health Program, notes, however, that “over the past several months we’ve made changes to processes in the emergency services to improve flow from emergency to inpatient care. This puts us in a better position for any increased demand.”
That’s not to say there won’t be any bumps when the new Act comes into effect. “With the introduction of shorter timelines for assessments and community treatment options that many psychiatrists and staff haven’t yet worked with, there are bound to be challenges,” says Scott Theriault, clinical director. “We hope that through education and other work we’re doing, we’ll minimize these.”
Professor Anthony David talks about the associations between insight and mental disorders, particularly schizophrenia.
Schizoaffective disorder merges schizophrenia and bipolar disorders as one disease - there is no schizoaffective disorder.
Lake CR, Hurwitz N.
Department of Psychiatry and Behavioral Sciences, University of Kansas School of Medicine, Kansas City, Kansas, and Veterans Administration Medical Center, Albuquerque, NM, USA.
PURPOSE OF REVIEW: Schizoaffective disorder was named as a compromise diagnosis in 1933, and remains popular as judged by its place in the International Classification of Diseases and the Diagnostic and Statistical Manual of Mental Disorders, its frequent use in clinical practice, and its extensive discussion in the literature. Some, however, have questioned the validity of schizoaffective disorder as separate from psychotic mood disorder. We examined the literature to assess the rationale for the continuation of schizoaffective disorder as a legitimate diagnostic category.
RECENT FINDINGS: The diagnosis of schizoaffective disorder depends on the disease specificity of the diagnostic criteria for schizophrenia; however, the psychotic symptoms for schizophrenia, traditionally held as specific, can be accounted for by psychotic bipolar. Further, the interrater reliability for diagnosing schizoaffective disorder is very low. A recent and expanding body of comparative evidence from a wide range of clinical and basic science studies, especially genetic, reveals multiple similarities between schizoaffective disorder, schizophrenia and psychotic bipolar.
SUMMARY: Schizoaffective disorder unifies schizophrenia and bipolar, blurring the zones of rarity between them and suggesting that schizoaffective disorder is not a separate, 'bona-fide' disease. Patients diagnosed with schizoaffective disorder likely suffer from a psychotic mood disorder. The diagnosis of schizoaffective disorder, which can result in substandard treatment, should be eliminated from the diagnostic nomenclature.

11 June 2007Gary Seymour and Wendy Miller both work at the reception desk at Community Mental Health Services, Bayers Road. Since the office’s opening on May 8, they’ve heard a lot of positive reviews about the bright and welcoming space, including “Wow. I feel like I’m at a spa.” And “This is really different.”
The warm, inviting and comfortable space was no accident. “A group of staff members took the lead on choosing colours and artwork for the walls and have done a tremendous job,” says Evelyn Pollard, service co-ordinator. “We still have work to do to make the space what we know it can be, but we are very happy with the response from clients.”
Community Mental Health Services, Bayers Road, will host an official open house in June, but in the meantime, please drop by to see the new location: Suite 109, Bayers Road Centre (entrance door between Lawtons and Fabricville).
To view photos of the new space, please click here.
My heart goes out to the families of Glen Race and his alleged victims. I echo the call for more treatment facilities and options for persons with mental illness.
Twenty years ago, my husband, John Legge, died by drowning himself at Point Pleasant Park while an inpatient at Camp Hill Hospital (Abbie Lane Building). A few months earlier, I had taken him to the then VG Hospital for behaving in a strange and uncharacteristic manner. The doctors in the emergency department told us he was depressed and could become suicidal, but they could not keep him against his will as he was not an "imminent" danger to himself or others.
Less than half an hour after leaving the hospital, he stabbed a family friend and was shot by a Halifax police constable who was called to the scene. After a stay at the East Coast forensic facility, he was transferred to the Abbie Lane for "treatment" and remained there until his ill-fated walk to the park on May 4, 1987.
In her report following the inquiry into John’s death, Judge Sandra Oxner stated that as a society, we have an obligation to offer viable treatment for persons with mental illness before they deteriorate to the point where they come in conflict with the law. It saddens me that 20 years later, we are still "discussing" the issue. I call on the government to put its money where its mouth is and adequately fund mental health treatment programs now, before its too late for yet another family.
Donna MacEachern, Halifax
It is 50 years since Arvid Carlsson showed dopamine to be a neurotransmitter.To read about the dopamine hypothesis of schizophrenia, click here.Catatonic rabbits were revived by dopamine in a 1957 experiment led by Arvid Carlsson (photographs, above). In the background is an image of Arvid Carlsson's 1957 publication in the prestigious journal Nature.
Rabbit photographs by Tor Magnusson

There is a good review in the New York Times of the new book called "The Brain That Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science" written by the Canadian psychiatrist Norman Doidge (who does work at Columbia University in NY). While this book is not specifically about schizophrenia - it provides hopeful stories and background information on the science of brain regeneration (called neuroplasticity) which provides hope for individuals and families that [live with] schizophrenia.

The Nova Scotia Early Psychosis Program is moving ......
(From The Nova Scotia Hospital site)
You have probably heard we are moving! Yes, it's true! Our offices are being relocated to:
The Abbie J. Lane Memorial Building
5909 Veterans' Memorial Lane
Halifax, Nova Scotia
B3H 2E2
There is no definite date yet.
(we expect it will likely occur by September 2007)
When more details are available we will pass them on to you.
We will make every effort to ensure your care is not interrupted, and we will continue to work hard to make sure convenient appointments are made available to you.
If you have any questions, please ask your clinician or call 464-5997

The community has a powerful role in the treatment and recovery of anyone suffering from a mental illness, and they will never become well in a community that does accept and tolerate them. They cannot remain outcasts from the village; they are your friends, your family. You see them every day on the bus, in the malls and on the street, and you wouldn’t know most of them were mentally from looking at them. They used to be hidden away in hospitals, never to see the light of day, but things have changed.
Institutions first began closing their doors out of economic necessity; because housing people in hospitals was very expensive, but there were very few supports in place in the community for these individuals, causing some serious social problems. “Psychiatric Ghettos” sprung up around the hospitals, filled with patients from all over the district, who had been tossed out and who were forced to fend for themselves.
Supports were eventually created, like free clinics, drug plans and affordable housing. This was also out of economic necessity, since the cost of these services was still much less than the cost of warehousing people in institutions.
Hospitalization became even more unnecessary when effective medications were developed to treat the symptoms of mental illness with fewer side effects and less chance of a relapse. Their struggle is now to find acceptance and a place in the community. They now have a chance to contribute to the society that supports them. They have a chance to lead normal lives.
However, there is still a great deal of stigma associated with mental illness. Housing programs have been struggling against the attitude of “not in our backyard”. People accept the need for housing, but don’t want it in their neighbourhood. There have been protests, petitions and demonstrations; even city aldermen have gotten into the act. The best way to fight this stigma is through public education about the facts of mental illness.
We refuse to be driven out of our homes.
Photograph by Brendel.


Mental health treatment seeking has become more acceptable over the past decade, and perceived stigma associated with it has declined. These changes in public attitudes have likely contributed to the growing demand for mental health services in the United States and will continue to do so in the coming years.Also visit this article in Psychiatric Times.



Community integration for individuals diagnosed with schizophrenia is essential to successful community tenure. Most of the research and clinical emphasis on the process of integration has been focused on the successes in normative goals (e.g., employment, support networks). Little research has focused on how individuals diagnosed with schizophrenia and schizoaffective disorder integrate in the realm of public life involving the casual routine interactions with other community members, termed "distal support" in this study. This was a cross-sectional study specifically designed to develop a measure of distal support and to identify clinical and sociodemographic factors associated with fostering distal supports.
Findings suggest that personality factors, specifically extroversion and openness, play a role in the process of fostering community distal supports. It was also found that a greater number of distal supports were associated with higher quality of life satisfaction ratings and sense of belonging scores with the participants who were diagnosed with schizophrenia. A greater number of distal supports were associated with higher hospitalization rates and emergency contacts among the participants diagnosed with schizoaffective disorder, but not among those diagnosed with schizophrenia.
Nova Scotians living with disabilities, including intellectual disabilities and long-term mental illness, will soon benefit from an expanded government program.
Initiated in Cape Breton last January, the Independent Living Support Program will begin to serve clients in the northern counties of Guysborough, Antigonish, Pictou, Colchester and Cumberland at the end of the month and will expand to the rest of the province over the next year.
"This program will help people maintain their independence, while ensuring they have enough support to meet their daily needs," said Judy Streatch (pictured), Minister of Community Services. "We've targeted our programs to meet the needs of individuals with disabilities by offering varying levels of support."
The Independent Living Support program serves people who are semi-independent and need a minimum level of assistance to live on their own in the community. It provides up to 21 hours of weekly support, including help maintaining health and wellness, household chores, and accessing services in the community.
The Independent Living Support Program expansion and other new services were announced in December 2004, following extensive community consultation. The services include: Direct Family Support, providing financial assistance to people who care for a family member with a disability at home; the Alternative Family Support Program, which offers a family-like setting in the community. These new programs complement existing residential services already in place for people who need a higher level of care in the community.

[A] report, "Mental Health, United States, 2004," was released by the Substance Abuse and Mental Health Services Administration's (SAMHSA) Center for Mental Health Services (CMHS) in March [2007]. It aims to provide a snapshot of the federal government's understanding of current mental health services, trends, and statistics that affect the nearly 44 million Americans who suffer from a mental illness in any given year.
To walk the last 5K of the Walk Nova Scotia Challenge, members of the Lunenburg County Chapter participated in Park View Education Centre's Field of Dreams 5K Walk in Bridgewater.
Below are some photographs from the Walk Nova Scotia Challenge reception, held Sunday, May 6th, 2007, at the Girl Guide's Cabin in Bridgewater.








An article by Robert I. Simon, M.D., published in the May 2007 issue of the American Journal of Psychiatry. 